Medical, psychosocial and social status of mothers raising children with nervous system pathology, receiving early assistance services for children and their families

Authors:

Kolcheva Yulia Aleksandrovna – PhD in Medical sciences (Cand. Med. Sci.), Associate Professor of the Department of Pediatrics, Leading Researcher at the Institute of Rehabilitation and Habilitation of the Disabled, Albrecht Federal Scientific and Educational Centre of Medikal and Social Expertise and Rehabilitation, 50 Bestuzhevskaya Street, 195067 St. Petersburg, Russian Federation; e-mail: uakolcheva@yandex.ru; https://orcid.org/0000-0003-0250-5478

Sologubova Elena Sergeevna – junior researcher at the Institute of Rehabilitation and Habilitation of the Disabled, Albrecht Federal Scientific and Educational Centre of Medikal and Social Expertise and Rehabilitation, 50 Bestuzhevskaya Street, 195067 St. Petersburg, Russian Federation; e-mail: el-sol@mail.ru; https://orcid.org/0000-0002-0421-8694.

Ishutina Inna Sergeevna – PhD in Medical sciences (Cand. Med. Sci.), Director of the Institute of Rehabilitation and Habilitation of the Disabled, Albrecht Federal Scientific and Educational Centre of Medikal and Social Expertise and Rehabilitation, 50 Bestuzhevskaya Street, 195067 St. Petersburg, Russian Federation; e-mail: in.ishutina@yandex.ru; https://orcid.org/0000-0002-6640-904X .

Annotation:

Introduction. Currently, there is an active reform of the system of comprehensive rehabilitation and habilitation of disabled people, for the first time at the legislative level the concept of early assistance to children and their families is enshrined. The study of the medical, psychosocial status of mothers raising children with nervous system pathology, receiving early assistance services for children and their families, is one of the important tasks of modern rehabilitation.

Aim. The aim of this study is to examine medical, psychosocial and emotional status of mothers with young disabled children, as well as mothers with children with compensated disorders of the nervous system, receiving early assistance services for children and their families, to identify correlations between the duration of early assistance services for children and their families and the psychological state of women.

Materials and methods. We examined 50 families receiving early assistance services with disabled children or children at risk of developing persistent limitations in life activities. Using the standardized multifactorial method of personality research (MINI-SMIL), we studied the personal characteristics of mothers with children under 3 years receiving early assistance services, analyzed parent-child relationships, determined the social status of the family, and considered anamnestic data.

Results. The medical, psychosocial status of mothers raising disabled children and children at risk of developing persistent limitations in life activities was studied. Correlations were found between the duration of receiving early assistance services for children and their families and the degree of preclinical mental dysfunctions.

Discussion. Early intervention to children and their families plays a key role in creating a favorable environment for the child’s development. Comprehensive assessment, prompt detection of problems, as well as psychological, social and medical support are the areas that need to be addressed so that mothers feel confident and know how to act, and a healthy psychological atmosphere is formed in the family that contributes to the successful growth and development of child.

Conclusion. Thus, the conducted study allowed us to identify the leading medical and psychosocial factors that affect the functioning of families with children with special needs, to establish a relationship between the state of the affective sphere of mothers and the duration of receiving early intervention.

List of cited literature:

1. Vetrila TG. Gendernye osobennosti psihicheskogo sostojanija roditelej, vospityvajushhih rebenka s narushenijami psihicheskogo razvitija [Gender-specific features of the mental state of parents raising a child with mental development disorders]. Klinicheskaja psihiatrija [Clinical psychiatry]. 2009;3(13):28-34. (In Russian).

2. Svetlichnaja TG, Nesterova IV. Harakteristika medicinskoj aktivnosti semej, vospityvajushhih detej-invalidov [Characteristics of medical activity of families raising disabled children]. Problemy social’noj gigieny, zdravoohranenija i istorii mediciny [Problems of social hygiene, health care and history of medicine]. 2010;4:19-23. (In Russian).

3. Wu YW et al. Cerebral palsy in a term population: risk factors and neuroimaging findings. Pediatrics. 2006;2:690-70.

4. Zernickij OB. Vzaimosvjaz’ roditel’skogo otnoshenija s psihojemocional’nymi sostojanijami detej s tjazhelymi somaticheskimi zabolevanijami [The relationship between parental attitudes and psycho-emotional states of children with severe somatic diseases]. Semejnaja terapija [Family therapy]. 2005;3:29-43. (In Russian).

5. Sobchik LN. MINI-SMIL jekspress-diagnostika sostojanija [MINI-STYLE express diagnostics of the condition]. Moskva [Moscow], 2002. 8 p. (In Russian).

6. Arhireeva TV. Metodika izmerenija roditel’skih ustanovok i reakcij [Methodology for measuring parental attitudes and reactions]. Voprosy psihologii [Questions of psychology]. 2002;5:32-8. (In Russian).

7. Solodjankina OV. Vospitanie rebenka s ogranichennymi vozmozhnostjami zdorov’ja v sem’e [Raising a child with disabilities in the family]. Moskva [Moscow], 2007. 80 p. (In Russian).

8. Alnahdi GY, Alwadei A, Woltran F. Measuring Family Quality of Life: Scoping Review of the Available Scales and Future Directions. International Journal Environ Res Public Health. 2022;23(19):15473-80. DOI: 10.3390/ijerph192315473.

9. Garcia-Grau P, Martinez-Rico G, Gonzalez-Garcia RJ. Caregiver Burden and Family Quality of Life in Early Intervention: The Role of Mothers and Family Confidence. European Journal of Investigation in Health, Psychology. 2024;14:1325-37.

10. Dunst CJ, Trivette CM, Snyder DM. FamilyProfessional Partnerships: A Behavioral Science Perspective. Psychology. 2000;2:27-48.

11. Leung DY, Chan HY, Chiu PK. Source of Social Support and Caregiving Self-Efficacy on Caregiver Burden and Patient’s Quality of Life: A Path Analysis on Patients with Palliative Care Needs and Their Caregivers. International Journal of Environmental Research and Public Health. 2020;17:54- 7.

12. Ponomarenko GN. Fizicheskaya i reabilitatsionnaya meditsina: fundamental’nye osnovy i klinicheskaya praktika [Physical and rehabilitation medicine: fundamental principles and clinical practice]. Fizioterapiya, bal’neologiya i reabilitatsiya [Physiotherapy, balneology and rehabilitation]. 2016;15(6):284-9. DOI: 10.18821/1681-3456-2016-156-284-289. (In Russian).

13. Ponomarenko GN. Principy’ dokazatel’noj mediciny’ v fizioterapii [Principles of evidence-based medicine in physiotherapy]. Voprosy’ kurortologii, fizioterapii i
lechebnoj fizicheskoj kul’tury’ [Problems of balneology, physiotherapy and exercise therapy]. 2004;2:46. (In Russian).